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From Late Effects Research to Quality Care: The Childhood, Adolescent, and Young Adult Cancer Survivor Program (CAYACS)

Date:

Speaker Info:

Mary McBride
Program Leader, The Childhood, Adolescent and Young Adult Cancer Survivor Program (CAYACS)
BC Cancer Agency

Description

The goal of this research project is to generate and transfer knowledge of late effects and care of young cancer survivors to optimize survivor and care outcomes

Key objectives:

  • Develop a resource for childhood, adolescent, and young adult cancer survivorship research 
  • Determine risks and predictors of late-occurring and long term medical problems 
  • Examine patterns and quality of (health) care in relation to these risks 
  • Transfer knowledge for change in (health) care policy and practice

Data sources used and linked:

  • BC Cancer Agency: BC Cancer Registry, health records, oncology scheduling, BC screening mammography program, BC cervical cancer screening program, CAIS treatment summary 
  • MOH: MSP Consolidation file, hospital separations (DAD), MSP payment information, Home and Community Care, Mental Health, Vital Statistics Deaths 
  • BC College Pharmacists: PharmaNet 
  • Ministry of Education: FSA Achievement data 
  • Ministry of Advanced Education: Program data 
  • Statistics Canada: Longitudinal Tax filer files

Strengths and caveats associated with data use:

  • Strengths: Longitudinal, person-based, comprehensive, accurate, verified 
  • Caveats: Privacy issues and delays in access; gaps in data

Analytic techniques used:

  • Multivariate and Logistic Regression

Policy implications / key findings:

  • Health and healthcare impacts: 
    • Among Oncologists and other cancer specialists: 
      • Raise awareness of issues; identify treatment toxicities; contribute to clinical decision-making; inform survivor care guideline development; encourage research into treatment alternatives 
    • Among Family physicians and other care providers: 
      • Raise awareness of late complications; identify high-risk survivors; provide targeted risk-based care 
    • Among Policymakers and Managers: 
      • Identify workload, costs to the system of inappropriate care, roles of health care providers, and appropriate resources; support cost-effective models of care 
    • Among Survivors: 
      • Raise awareness of long-term issues for self-management

 

Speaker Bio:

Mary McBride's research interests include childhood and young adult cancer issues, non-ionizing radiation as a cause of cancer, and cancer registries. She is a member of the Agency's Paediatric Tumour Group, a committee member of the Cancer in Young People Surveillance Program of the Public Health Agency of Canada, and a member of the C17 Canadian childhood cancer research group. She has served on committees for the Ethics Office of the Canadian Institutes for Health Research (CIHR) and the North American Association of Central Cancer Registries. She was a member of an Expert Panel for the Royal Society of Canada in a review of potential health risks of radiofrequency fields from wireless communication devices (1999), and a member of an expert Advisory Committee for a National Tower Policy Review sponsored by Industry Canada (2005).

She is a member of several professional associations, including the Children's Cancer Group (COG) (a North-America-wide clinical research group for childhood cancer), and the International Society for Pediatric Oncology (an international professional society).

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